Vilvens signs with Mount St. Joseph SBAAC awards girls tennis all-stars Layman inducted into Miami University Athletic Hall of Fame SBAAC hands out awards to First Team girls’ soccer all-stars John D Marks Fourteen indicted by Brown County Grand Jury Commissioners donate to task force Voters return Worley to the bench Georgetown Police Department welcomes new officers Ruby A Ratliff Donna J Moore Stella M Glasscock Ellen L Gelter Alverda T Guillermin Justin N Beach EHS dedicates ‘Kiser Court’ SBAAC awards First Team football all-stars, winning teams Sizer earns SBAAC American Division Volleyball Player of Year honors for 3rd straight year Broncos to host Blue Jays for OHSAA ‘Jimmy Young’ Foundation Game, Nov. 17 Vern W Kidd Jr Brown County Election Results – 2017 Michael D Hines Raymond W Napier Leslie E Boyle Gary L Barber Meth makes a comeback The bomber crash of 1944 4-H holds ‘shootout’ with BCSO County jobless rate falls Russell K Wolfer SHAC recognizes volleyball all-stars SHAC cross country all-stars take home awards Eastern girls finish runner-up in SHAC golf standings Week 10 football roundup Kathleen J Bright Sister Marjean Clement Veterans Service Office Moves G’town FFA has great fair Bald Eagles spotted 2017 Celebration of Lights being planned Eight indicted by grand jury Carlos L Beck Georgetown XC teams qualify for regional championship meet Warriors advance to Div. II Regional Meet Lady Rockets reach end to successful volleyball season Week nine football roundup Lady Warriors regional bound Amy J Caudill Bertha Lindsey Bobby S Conley Body found in ditch, investigation underway Former Aberdeen Fiscal Officer pleads guilty Keeping kids safe on the school bus Mary E Hahn Gary R Cornette Week 8 football roundup Notable soccer season reaches end for G-Men Lady Broncos are SBAAC American Division XC champs SHAC XC title goes to Lady Warriors Arthur Smith Eugene M Jennings Jr Billy R Kilgore Sr Carol D Roberts Thelma L Gray Sheriff Ellis meets President Trump Quarter Auction to pay for fire engine restoration Upcoming Quarter Raffle, Oct. 14 to benefit PRC Man found dead in ditch Rev Alvin B Woodruff Jackson L Russell Lady Broncos bring home 11th SBAAC American Division title in 12 years Lady Rockets wrap up regular season Warriors rally for win Broncos make it two in a row Helen L Whalen Veterans saluted at the Brown County Fair Fayetteville cancels school after threat Tommy J Stamper Sue Day Broncos move closer to SBAAC American Division title Lady G-Men working hard, showing improvement Sports complex soon to open in Mt. Orab Week 6 football roundup H Ray Warnock Jennings faces multiple sex offenses Georgetown nears water system completion Bible Baptist Barbeque brings big crowd Linda Taylor Rene Sizemore-Dahlheimer Eugene Snider Eric Workman Gregory Terry Edith M Moore Eileen Womacks Michael C Jennings Janice K Brunner Cheer squads compete at ‘Little State Fair’ Truck, tractor pulls draw a crowd at Brown County Fair Week 5 football roundup Lady Broncos rise to 11-6 with win over Batavia

Disabilities: Parents give Kiki their best

The day Chiara “Kiki” Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Roberts’ learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At , and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

http://newsdemocrat.com/wp-content/uploads/2015/09/web1_VanceDaniel.jpg

By Daniel J. Vance MS, LPCC

Contributing Columnist

Leave a Reply

Your email address will not be published. Required fields are marked *

2016 News Democrat